Jean-Christophe Bélisle-Pipon (Simon Fraser University) et Ravi Soni (Simon Fraser University) publient un nouvel article intitulé « Honouring Dissent Without Feeding Surveillance Systems » dans The American Journal of Bioethics.

Résumé

This article critically examines the ethical implications of continuous consent processes for real-time location systems (RTLS) in dementia care, focusing on the tension between feminist bioethics, epistemic justice, and surveillance. It highlights that RTLS generates near-continuous behavioral data beyond location tracking, raising concerns about repurposing such data without clear patient-centered governance. The authors argue that interpreting residents’ behaviors-such as agitation or device removal-as definitive consent triggers risks misclassification and epistemic injustice, emphasizing the need for clinical assessment, familial input, and documented preferences alongside behavioral cues. They call for explicit policies distinguishing dialogic from instrumented consent, binding data minimization protocols, and greater resident control over data use to prevent surveillance from undermining relational autonomy.