“Ethical and Epistemic Entanglements of Person-Centred Epidemiological Measures”
Leah McClimans (Associate Professor of Philosophy University of South Carolina), offrira une présentation intitulée “Ethical and Epistemic Entanglements of Person-Centred Epidemiological Measures”, mercredi le 14 mars 2018 entre 12h30 et 14h00, au Institute for Health and Social Policy de McGill (Charles Meredith building, 1130 avenue des Pins, Ouest).
Résumé:
Since the 1970s epidemiological measures focusing on “quality of life” have figured increasingly as endpoints in clinical trials. In this talk I begin by examining the history of these measures, which were later relabeled “patient-reported outcome measures” or PROMs. The ability of these measures to faithfully report patient concerns and/or quality of life has been contested for much of their history. I will argue that this ethical concern is linked to epistemic concerns about the validity, interpretability and responsiveness of these measures. I will suggest that researchers cannot put the ethical question to one side and move forward with the methodological and epistemic ones.